Red Light Therapy

Time for the lights. The nurse removes all the plastic wrap from  my body. Some red areas are redder than others.  She tells me my body will be done in sections using the light.  I remain in the recliner sitting upright close to the front edge of the chair.The light machine is placed 2 inches directly in front of my chest  She hands me eye goggles and helps me fit them to my face.  She asks if I am ready?  I want to ask, ready for what, but stay silent.  The machine is turned on….she says she will be back in 10 minutes.  I immediately think, 10 minutes and I am not comfortable!  Right away I start to feel stinging to my chest.  It feels like a rubber band stinging me but the sting does not stop!  I try to visualize cancer cells dying with each sharp sting!  10 minutes is a long time to sit in one position especially when it’s not comfortable.  I survive the first round!   5 more rounds ending with my left leg concentrating behind my knee.  This time it hurts like a hell!  I am either tired pr this really hurts!  The nurse applies sun screen to each area, gives me my aftercare instructions and sets up next apt. for 6 weeks.

I redress….long sleeve workout jacket zippered up to the neck and long pants.  I can’t chance the sun on my skin.  I am now photo sensitive and will burn within minutes.  Time to head home to my already darkened house.  Living like a vampire for 72 hrs.

Incubation Time!

Today, I start my PDT ( photodynamic therapy) for my many actinic keratosis, pre basal cell and superficial basal cells.  I goggled ( yes, I am the queen of googling) treatments for skin cancer I kept seeing the words, light therapy and photo therapy.  I continued goggling and reading trying to learn as much information as I could to help make an informed decision.
A few dermatology visits ago, I spoke with my dermatologist regarding my being a candidate for this treatment.  He and I spoke of the pros and cons.  Biggest con…I must hibernate indoors with minimal light for 72 hrs.  Biggest pro….no cutting!  I can live with both!!!!  So appointment scheduled!!
I arrive at 8am sharp!  Bag of goodies, entertainment( iPhone, iPad, charger) and wide brimmed hat & extra clothing in hand.  I feel more relaxed then nervous.  The nervousness is because, I never having this treatment, am not sure what my healing time will entail.  Relaxed because today is another step and another day towards treatment & recovery.
The nurse and I decide which areas of my body will be treated today.  At first I was going to treat just my chest and treat other areas in future.  But further thoughts made me decide to treat chest, arms, and legs in one visit.
The cream Metvixia, is applied to all the many red spots.  Laughing I tell the nurse, that isn’t the cream I had read about, but will goggle later to learn about it.  Next Glad Wrap is placed over each area to help with the incubation period.
2 1/2 hrs to incubate!  That’s why I came prepared with my bag of stuff!  I am in a plain room.  No windows!  One large recliner placed in the middle of floor.  Too far from the electric outlet for my charger to reach.  So here I am in my flimsy hospital gown, plastic wrap clinging to my skin pushing the heavy chair closer to the wall.
Sitting and waiting isn’t easy to do!  Even though I have my entertainment I am antsy!  Been to the bathroom already.  Walking the long hallway, plastic wrap crinkling, gown flapping and me trying to stay covered!

Nurse has come to room 3 times already to see how I am coping.  All plastic intact covering the appropriate skin areas.  Small tingling on some of the red areas but hardly noticeable.  The red areas are becoming redder which is to be expected.

One more hour to incubate then ” It’s Light Time”!!!!

Not the words I wanted to hear!

“It’s basal cell carcinoma”. Not the words I expected or wanted to hear this morning!  This is from the 2nd biopsy?, I ask the nurse.  Yes it is, she answers.  You will be scheduled for MOHS surgery for your cancer as soon as possible, she tells me.

My mind is racing!  So many thoughts!  How can this be?  This past week has all been for nothing!  Being so diligent and careful taking care of my leg incision.  Working and walking on a leg that screams with every step!

I am tired, so very tired! Tired of being cut piece by piece!  Tired of this hurt and pain!

Yesterday’s Work!

One incision approx. 4″ long.  Internal sutures and external running suture. 

After an exhausting day, I went to bed hoping for a good nights sleep. I thought if I just kept my leg flat with no movement I would be able to doze off.  Boy, was I wrong!  Leg flat, turned to the side, bent at the knee, knee on pillow…nothing worked.  The incision would start to pull, then the pain would increase.  A lot of tossing and turning for many hours.  The more tired I became the more my leg hurt.  When morning finally came and I decided to give up on sleeping. Walking slowly across my bedroom looking at Randy, first words out of my mouth, ” I am going to complain!”. 

Today, dressing removed and wound cleaned.  blood is still oozing from the center of the cut.  I applied another pressure dressing and will reevaluate later today!

Maybe….

Maybe the lump that proved to be the dreaded basal cell cancer is now removed!  I hope so!  Today, the incision was reopened and more tissue removed by my dermatologist.  The prior 1 inch incision is now 4 inches in length.  More sutures, inside and on the outside to be removed in 10 days. Yes, I can remove them.  I am trusted by the doctor to know how to clip the threads and pull them out. But not too early not wanting the incision to re-open  Another biopsy will be done on the tissue that was removed to be sure all edges are free and clear of any cancer cells.  The phone call with the results will be in 1 week.
Lidocaine is such a wonderful drug!  I hate the intense  burning sensation as the medicine is injected slowly thru my skin.  Once the lidocaine has starting working, skin numb, I relax and breath!  I can’t imagine having my skin cut with out the skin being numb! 

Lidocaine, numbness, cutting, stitching and dressing…  Another day, another lump gone!  Maybe!

Always!

Today, I look ahead!  This week, I take care of another mass of cancer cells that seem to like my R thigh. 

Tuesday, I have my leg incision reopened and made larger.  I hope the damn cancer cells are removed this time! I do not care what this incision looks like!  It can be large!  It can leave an indentation on my upper R thigh!  I just want this lump gone!  No more cancer cells lurking threatening to grow larger or move on to other areas of my body!

Does it sound like I am angry?  I am pissed off!  I do not like the feeling of the needle piercing my skin to inject the lidocaine.  Yes, it will go numb and I will not feel the cutting or scraping but I know I will feel pain as soon as the lidocaine wears off.  Lidocaine burns!  Some areas of my body burn more than others but it burns regardless of the location.  I always expect the worse and brace my body for the entense burning!

Luckily my doctor is compassionate regarding how I am reacting or feel as he injects the lidocaine.  He continually asks, am I doing ok?  “Don’t hold your breath.  It will be over   soon”.

I engage in a conversation with the doctor and nurse.  I know the conversation is to try and keep my mind off what he is doing to my leg. I am saying words but I am very well aware of what is going on in the room.  Injections, numbness, pressure from blade cutting thru my skin, plastic cup that holds a small piece of my skin for biopsy, doctor saying it went well, nurse applying pressure to stop the bleeding, explaining again that I bleed, nurse applies a dressing, and I am given instructions on care and signs of infection.  

 Always pain!  Always hurt!  Always tears!

Conversation of Death

I survived my work week!  I work 3 or 4, 12 hr shifts, 7am to 7pm, every week as a RN in an Emergency Room.  I am a charge nurse and usually walk 6 – 8 miles per shift.  One day I did walk 11 miles.

Emotionally, I wasn’t sure how I would handle this work week .  Most coworkers still didn’t know or realize what I had experienced the previous week regarding my skin cancer. I would notice many just looking at me with a questioning look.  Only a few asked me how I was doing and/or feeling.  For those who asked the question, ” what is going on?” I appreciate your asking and then taking the time to listen.

My face was almost healed.  Just a small healing sore below my eye.  The side of my nose was hardly noticeable.  My thigh healing but only hurt when I pulled the healing sutured area the wrong way.  Sitting and then standing up sometimes caused a sharp pull of sutures.  More than once I went into the restroom to be sure I hadn’t ripped out a suture.

My most memorable moment was a cancer patient who arrived by ambulance.  She came to us because she had increasing SOB (shortness of breath).  This SOB started after her doctor inserted a chest tube to drain fluid that was filling her chest.

She was beautiful!  She had a bright smile on her face and very alert eyes as she was rolled thru the ambulance doors entering our ER.  Her sparse hair was only about ½ inch in length.  Grey/white strands of hair that stood straight out. 

  I assigned a room to her in the area where critical and sicker patients are evaluated.  I went into her room to see if I could help her assigned RN.  She was still smiling and the 3 of us started a conversation regarding her and the care she was going to receive from us.

She told us she had been healthy all her life and was diagnosed 5 months ago with stage 4 lung cancer.  She had seen her doctor due to feeling SOB and coughing.  She had never smoked nor had lived with a smoker. 

This woman then spoke of dying.  She wanted us to know she was not angry. She expressed her acceptance of death!  “Feisty” is what she called herself and said that is what keeps her going.  Speaking of a cancer group she attends and spoke of the sadness and defeat most members displayed and spoke of.  She told us when she spoke of her taking her own life she was snubbed and told she had given up.  And she wasn’t going to do any more Chemo since the 1st round left her deathly sick.  She was upset that she allowed the doctor to insert the chest tube. 

Still with that beautiful smile, she looked at me and the other nurse and asked what would be a good way to end her life.  The other nurse and I then looked at each other.  I was wondering what the other nurses view was regarding someone ending their life and she probably was wondering the same about me.  I told her to goggle that question and she would find many sites that would offer suggestions and ideas.  She said she had been saving her pain medicine, Morphine and asked how much would she need to take to cause death.  I told her if she googled end of life she would also read about medications and dosages.  She let us know she understood we couldn’t answer her questions but thanked us for the idea of using her computer to find the answers she needed.  I told her that if and when she decides her life is to end she needs to be sure no one will find her until her body has died.  I explained that if EMS responds and brings her to a ER we will be legally obligated to resuscitate her since suicide is not legal. 

She laughed and told us that she had recently moved to our state, New Mexico.  She had been living in Oregon a state that had a right to die law and thought NM had the same law but quickly found out it did not. 

The other nurse left the room leaving this woman and I to talk.  I pulled up a chair and told her of my recent health issues. We shared our views on life, Birth, Living and Death, all a part of everyone’s life.

 We spent a very short period of time together and you touched me greatly!  I will remember your beautiful smile & eyes and your feisty spirit! I pray you find the answers you are looking for.

To My Husband

Yesterday, I told my husband, Randy that if he ever feels like all this is too much for him then he can/should/need to leave.  I want him to be able to look at me and not cringe inside.  I do not want pity.  I do not a partner that feels that he has to stay out of obligation.  Randy looked me in the eye and said ” I love you! I didn’t marry your face.  I married you!  I will be with you, right beside you, regardless of what is too come” 

I listened to this song this morning and thought of me, him and us. 

Randy, I love you!

We said we’d walk together
Baby come what may
Back from the twilight
Should we lose our way
As we were walking
A hand should slip free
I’ll wait for you
Should I fall behind wait for me

Swore we’d travel together
Darlin’ side by side
We’d help each other
Stay in stride
Each lover steps on
So differently
So I’ll wait for you
Should I fall behind wait for me

Everyone dreams of
A love lasting and true
You and I know what this world can do
So let’s make ourselves be
That the other may see
And I’ll wait for you
Should I fall behind wait for me

There’s a beautiful river
In the valley ahead
There ‘neath the oak’s bough
Soon we will wed
Should we lose each other
In the shadow of the evening dreams
Oh, I’ll wait for you
Should I fall behind wait for me
Darlin’ I’ll wait for you
Should I fall behind wait for me

Wait for me
If I should fall behind wait for me
Wait for me